I had surgery yesterday. A surgery that has been 2.5 years in the making. The actual surgery itself for me is kinda personal, so I have been toying with sharing for the last three months when my doctor pretty much said it was time. The reason behind the surgery is what needs to be public. However, the surgery for me feels extremely private.
I have post tubal ligation syndrome which is a kinda newer diagnosis. Though I believe it has always been around, but doctors just started paying attention and not telling their patients to see a psychiatrist. Basically women would come in and complain and their doctors treated them like they were crazy. Thankfully, I have never been told that. Essentially I had a tubal ligation with ablation and the combo of the two more times than not will mess with a females hormones and body. It comes with some nasty symptoms (or side effects depending on how you look at it). They don’t really know why these things are happening and they just started acknowledging it as a thing in late 2011.
I had the original surgery 5 years ago. If you read here back then you probably remember I got really sick immediately following surgery. I carried a 101-102 temp for 21 days and I incessantly vomited all 21 days. No one could really figure out what the problem was. They say this is pretty normal for this procedure basically because it cuts off blood flow from tubes to uterus. Once I got better things were going relatively well till about a little more than two years ago right before my guy got TN sick.
I suddenly suffered from dibilitating pain at random times and always on my left side. The doctor was ready to go in and see what needed to be fixed to get rid of the pain. This would have been 2013. Though he didn’t calls it PTLS, so imagine it wasn’t figured out even then by my doctors office. Then my guy got sick and I refused to even consider surgery and I just learned to cope with heating pads and and warm baths. It got to the point eventually that I was diagnosed twice with bleeding ulcers from my excessive Advil usage to cope with the pain.
Every time I saw my doctor and he discussed this surgery and I had another ultrasound he would push for the surgery. But
In November of this year finally the pain got so bad I knew it was time to do something. So I began the process for the surgery. It was discovered I had massive amounts of scar tissue and fluid stuck all over my uterus and tubes because of the previous procedure. The surgery I had yesterday was to remove the scar tissue so that that the trapped fluid could leave. This was attempted in hopes it will help with the horrible pain I have. If not…this summer I will undergo a total hysterectomy.
Again the important part of this post isn’t the personal side of this surgery. Instead I am sharing so others can read my symptoms. My doctor left his practice earlier this fall and I switched to a new doctor that actually not only knew about PTLS, but she made a quick diagnosis. She told me the name and told me to look it up. And if I am being honest I was grateful and shocked to see that others were suffering like me. So I hope to do the same as what all the brave and courageous women who were sharing stories similar to my own.
My Symptoms of Post Tubal Ligation Syndrome
- Immediately following surgery there were unexplained complications like fever and nausea
- Peeling and cracked finger nails
- Random pain in your abdomen that radiates through hips and knees
- Excessive mood swings
- Achy joints (especially knees)
- Weird acne in weird places
- Bleeding ulcers and stomach pain from excessive use of Tylenol, Advil and Motrin
- Hair falling out in huge clumps
Just remember these are my symptoms. I know others have different symptoms, but most are usually similar. The part I find odd is I was in less pain immediately after the surgery compared with the pain I had the week before. That tells me how bad the pain truly was/is. I go for a follow up in three weeks to see if the pain has subsided. Crossing my fingers it does.
There isn’t much I am thankful for when it comes to TN. However, I am on this. This was/is so minor compared with what we have gone through with my guy. The nurse and I were even joking compared to Kyle this is nothing. It just had finally gotten to a point where it was disrupting my life on a regular basis.
So here’s to hoping this fixed things.